top of page
Check out Our Blog!
Search
Giving Tuesday Live Correction
Our live Q and A will be at 6pm CST
taragrbr
Dec 3, 20241 min read
Giving Tuesday
Embracing the Spirit of Giving: Why Donations Matter on GivingTuesday and Beyond The holiday season often brings a whirlwind of shopping,...
taragrbr
Dec 2, 20241 min read


Rare Disease Sloth Run
We are so excited to do our first .5k Sloth Run! You can participate in any way you would like. We have many options for those who may be...
taragrbr
Feb 6, 20241 min read
GivingTuesday
On November 28, 2023, people all around the world are coming together to give back. Will you be one of them? Superior Mesenteric Artery...
taragrbr
Nov 26, 20232 min read
2023 Awareness and Memorial Videos
Our patient awareness and memorial videos are now available on YouTube Patient Awareness: https://youtu.be/cuSUpq-M_2A Memorial:...
taragrbr
Jan 28, 20231 min read
Awareness Week Events - updated
Meet Kelly Baker with the Oley Foundation Jan 24 8pm EST https://fb.me/e/32MVSWzDz Positional diagnosis with Laura Zimmerman Wayne Jan 25...
taragrbr
Jan 23, 20231 min read


Awareness Week Events
On January 24th 8pm EST check out our live presentation with Guest Kelly Baker from the Oley Foundation. This is a free event!...
taragrbr
Jan 12, 20231 min read


taragrbr
Nov 19, 20220 min read
Fundraiser -Canceled
A night with LJ has been canceled unfortunately. Will hopefully be rescheduled at a later date.
taragrbr
Nov 11, 20221 min read


Fundraising Event
The SMAS Nonprofit is excited to announce that on November 20 one of our very own SMAS Warriors- LJ the Medium will be hosting an online...
taragrbr
Nov 5, 20221 min read
Zoom Q and A Reminder
Just a reminder of our Zoom meeting with Dr. Alvear and Dr. Kim. Join Zoom Meeting: Friday 7/29 at 7pm CST, 8pm EST...
taragrbr
Jul 29, 20221 min read
Q and A with Dr. Alvear and Dr. Kim
This Friday the SMAS Nonprofit will be hosting a live zoom meeting with Domingo Alvear, MD our medical advisor. We have also invited...
taragrbr
Jul 25, 20221 min read
Auction!!
Please check out our online auction benefiting the SMAS and National MALS Foundation. We have handmade items, jewelry, sports memorbilia,...
taragrbr
Jun 12, 20221 min read


New Raffle Item
Comfort basket donated by Reagan Whealan https://app.galabid.com/smasraffle/ Contains: Warrior Necklace White Orchid and Jasmine Bath Set...
taragrbr
Jan 19, 20221 min read
SMAS Presented by Dr. Domingo Alvear M.D.
An online event benefiting the SMAS Patient Assistance and World Surgical Foundation. An opportunity to learn more about SMAS and ask Dr....
taragrbr
Jan 13, 20221 min read


Quilt Raffle
We are raffling a t-shirt quilt made by Staci and Sue as well as 31 Bags. Photos of prizes below. To purchase raffle tickets:...
taragrbr
Jan 8, 20221 min read


Invisible Battles
We would like to give a huge shout out to Caitlin Godwin for her marketing and design work. She has worked to improve our website,...
taragrbr
Dec 12, 20211 min read
Last day for photo
Today is the deadline to be included in the 2022 SMAS Awareness video. Please email 1 photo to smasvoices@gmail.com Include name and...
taragrbr
Nov 30, 20211 min read
Announcements
**Nov 30** Deadline to email picture to be included in the yearly **SMAS Awareness Day Video**!! smasvoices@gmail.com **Nov 30 Giving...
taragrbr
Nov 28, 20211 min read
Holiday card request
We are collecting addresses to mail out holiday cards. Please fill out the form asap to be added to our list. https://forms.gle/Ctvciji54...
taragrbr
Oct 12, 20211 min read
bottom of page