Staci and Tara have had the privilege to visit 4 patients with SMAS in the last week. We love being able to reach out to these families and let them know that they aren’t alone in this journey and we are in their corner supporting them. Thank you for letting us visit, share our experiences, and telling us your stories.
Our patient awareness and memorial videos are now available on YouTube Patient Awareness: https://youtu.be/cuSUpq-M_2A Memorial: https://youtu.be/boCypPIip0Y We thank everyone who submitted photos and
Meet Kelly Baker with the Oley Foundation Jan 24 8pm EST https://fb.me/e/32MVSWzDz Positional diagnosis with Laura Zimmerman Wayne Jan 25 7:30pm EST https://fb.me/e/5eEi4NbRL SMAS Presentation with Dr
