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Tube accessories

  • Writer: SMASRAS
    SMASRAS
  • Feb 20, 2018
  • 1 min read

Many people with SMAS have feeding tubes. Sue Kibby suffers from SMAS and has a feeding tube. She makes products to make your tube not only more comfortable, but stylish. She donates a portion of proceeds to the nonprofit. We’d like to thank her for helping out the nonprofit. Please check out her Etsy shop. https://www.etsy.com/churchmousegifts/listing/578219288/handmade-feeding-tube-pads?utm_source=Copy&utm_medium=ListingManager&utm_campaign=Share&utm_term=so.lmsm&share_time=1517954033798

She also has a Facebook page: https://m.facebook.com/groups/433215317095363

 
 
 

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14 Comments


museimage
Jul 16

Practical guides like this can be incredibly valuable for patients and caregivers navigating tube feeding. Even small accessories can make a meaningful difference in comfort, convenience, and everyday routines. It's great to see organizations providing useful resources for people living with SMAS and their families. I sometimes explore Muse Image AI healthcare education visuals to better understand how medical information can be presented clearly and compassionately.

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museimage
Jul 16

This looks like a really helpful resource for people managing feeding tubes and related equipment. Having clear information about accessories can make daily care and organization much easier, especially for patients and caregivers dealing with complex nutritional needs. I also appreciate resources that explain medical topics in an accessible way. I enjoy exploring AI Muse Video medical education content for creative ways to communicate healthcare information clearly.

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tscxmz7037
Jul 12

It is truly inspiring to see how Sue Kibby is using her creativity to make life more comfortable and stylish for those living with SMAS. Finding practical solutions for feeding tube accessories can make such a big difference in daily quality of life. I wonder if there is any way to integrate motion control video Al into educational content to help raise more awareness for this cause king nasir dance.

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rm7043143
Jul 05

Excelente publicación. Es admirable ver cómo pequeños detalles, como los accesorios para sondas de alimentación, pueden mejorar la comodidad y la confianza de quienes viven con SMAS. También es inspirador que parte de las ventas apoye a una organización sin fines de lucro y ayude a crear conciencia sobre esta enfermedad poco frecuente. Compartir iniciativas tan solidarias es una verdadera los numero de hoy para la comunidad. ¡Gracias por todo el trabajo y la dedicación!

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thomas_wang
Jun 20

Love that this highlights a patient actually making practical accessories — that kind of peer-made solution tends to be way more thoughtful than generic hospital gear. It also makes me think about how “style” can be supportive in its own way, like when people find a look that suits them (I stumbled on https://stylelooklab.com while trying to figure out my own soft summer color palette). Also curious if the Q&A ever covers adhesives/skin barriers, since that’s where a lot of the discomfort seems to come from.

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