Tube accessories
- SMASRAS
- Feb 20, 2018
- 1 min read
Many people with SMAS have feeding tubes. Sue Kibby suffers from SMAS and has a feeding tube. She makes products to make your tube not only more comfortable, but stylish. She donates a portion of proceeds to the nonprofit. We’d like to thank her for helping out the nonprofit. Please check out her Etsy shop. https://www.etsy.com/churchmousegifts/listing/578219288/handmade-feeding-tube-pads?utm_source=Copy&utm_medium=ListingManager&utm_campaign=Share&utm_term=so.lmsm&share_time=1517954033798
She also has a Facebook page: https://m.facebook.com/groups/433215317095363
It is truly inspiring to see how Sue Kibby is using her creativity to make life more comfortable and stylish for those living with SMAS. Finding practical solutions for feeding tube accessories can make such a big difference in daily quality of life. I wonder if there is any way to integrate motion control video Al into educational content to help raise more awareness for this cause king nasir dance.
Excelente publicación. Es admirable ver cómo pequeños detalles, como los accesorios para sondas de alimentación, pueden mejorar la comodidad y la confianza de quienes viven con SMAS. También es inspirador que parte de las ventas apoye a una organización sin fines de lucro y ayude a crear conciencia sobre esta enfermedad poco frecuente. Compartir iniciativas tan solidarias es una verdadera los numero de hoy para la comunidad. ¡Gracias por todo el trabajo y la dedicación!
Love that this highlights a patient actually making practical accessories — that kind of peer-made solution tends to be way more thoughtful than generic hospital gear. It also makes me think about how “style” can be supportive in its own way, like when people find a look that suits them (I stumbled on https://stylelooklab.com while trying to figure out my own soft summer color palette). Also curious if the Q&A ever covers adhesives/skin barriers, since that’s where a lot of the discomfort seems to come from.
The “stylish” part honestly isn’t trivial — when your tube is visible all the time, having something that looks intentional can take the edge off mentally. Side note, seeing people personalize medical stuff always reminds me of how creators tweak visuals in imgg — same idea of making something functional feel like it’s yours. Would love to know if these pads hold up well after lots of washing.
It’s easy to forget how much little things (like pads and covers) can change day-to-day comfort when you’re dealing with a feeding tube long-term. I’ve noticed people also underestimate how much feeling “normal” matters, not just the medical side — a bit like this handy cipher identifier approach where small clues add up. Curious if anyone’s found certain materials irritate less when skin is already sensitive?