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JT Fletcher

September 17, 1998 - June 13, 2014

He got SMAS from severe Lordosis. His spine was smushing his intestines so food couldn’t leave his stomach. He went thru g/j tubes and central lines. First diagnosed in 2010. We learned problem with doctors is when he could not eat anything they called it SMAS but when he could eat (thru g or j tube) they would not recognize he had SMAS. So he had to get in severe condition for them to consider SMAS surgery options. In 2012 they finally did a procedure of moving his organs away from his spine /SMA . By this time his gallbladder had stopped working and was sludge, he was in severe pain. After surgery his stomach took time to work again (moving food) thru pylori and into intestine. He remained on medicine for 2 yrs after to help the motility of his stomach. He had a great 2 yrs after surgery. Unfortunately he passed away on June 13, 2014 at the age of 15. My wish is that they would recognize SMAS sooner. He will always be remembered as our Super Hero for his positive spirit, strength and smiles he gave his family and the world. Forever in our hearts, gone but not forgotten.

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