Hello, I'm Sue, I am on the board of directors for the SMAS non-profit. I make cards for the LiLi Luxe Card campaign. I sew my own tubie pads, accessories, and enjoy quilting. My sewing allows me the opportunity to donate to the SMAS Patient Assistance.
I was diagnosed with SMAS in 2015. I had gone from 135 pounds down to 81, had at least 6 abdominal surgeries, 3 PICC Lines for TPN and hydration. I also suffer from gastroparesis, have a J tube for feeds and medications, and a separate G tube in my stomach to vent and drain. I love what I do because it helps the non-profit and all the warriors.